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CHI
2011
ACM

Competing online viewpoints and models of chronic illness

9 years 6 months ago
Competing online viewpoints and models of chronic illness
People with chronic health problems use online resources to understand and manage their condition, but many such resources can present competing and confusing viewpoints. We surveyed and interviewed with people experiencing prolonged symptoms after a Lyme disease diagnosis. We explore how competing viewpoints in online content affect participants’ understanding of their disease. Our results illustrate how chronically ill people search for information and support, and work to help others over time. Participant identity and beliefs about their illness evolved, and this led many to take on new roles, creating content and advising others who were sick. What we learned about online content creation suggests a need for designs that support this journey and engage with complex issues surrounding online health resources. Author Keywords Health, Interviews, Search, Social Media, Community ACM Classification Keywords H.5.3. Information interfaces and presentation (HCI): Group and Organization...
Jennifer Mankoff, Kateryna Kuksenok, Sara B. Kiesl
Added 25 Aug 2011
Updated 25 Aug 2011
Type Journal
Year 2011
Where CHI
Authors Jennifer Mankoff, Kateryna Kuksenok, Sara B. Kiesler, Jennifer A. Rode, Kelly Waldman
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